FAIL day

I did not sleep Sunday night. At all. Not even in a dozing-between-glaring-at-the-alarm-clock-on-the-hour way. I lay under my duvet like a particularly rigid I-beam, and watched my thoughts hurl themselves endlessly against the bars. They’re not very bright at 3 am, my thoughts. And then, because I was not asleep, I kept needing to pee, so I kept waking H up. And H was being so very sweet about it. If I’d’ve been H I’d’ve beaten me senseless with the bed-side table on the third go-around. Perhaps he didn’t because I made a noble attempt to beat myself senseless on the bed-side table, by completely misjudging its position with relation to my ascending head as I forced a bend into my I-beam and levered myself off the mattress for the umteenth widdle.

Ow.

So Monday morning, I utterly failed to go to work. I was tired to the point of mental incapacity, my head hurt, and, you know, sod it. Sod it all. Sod it very hard indeed.

In an attempt to derail Bitter McTwisted from grinding on and on about my immense uselessness to the entire human race not least my own self, I spent the day playing phone-tag with the Recurrent Miscarriage Clinic instead. Oh, and laundry and dishes. I did them too.

I finally got hold of Senior Consultant’s Secretary mid-afternoon, and explained to her that I had seen Senior Consultant at the beginning of December, and he had sent me off to have eight vials of blood drawn, and then referred me back to the Assisted Conception Unit who would allegedly discuss these results with me, and lo, after setting my attack-GP on them I had received the referral letter at last, and excuse me? 26 of May appointment? I also pointed out I had had another miscarriage since I had seen Senior Consultant, bringing my Official Count to three. And that making me wait until the end of May to even begin to discuss the results, let alone do any follow-up or repeat testing, was Not On.

The secretary agreed, and told me what I really needed to do was get my GP to refer me to Professor Lesley Regan’s clinic at St. Mary’s Hospital, Paddington. She, you see, is Britain’s ultimate expert on recurrent miscarriage.

Oh.

Wait, what?

Is it normal for the secretary of a given clinic to tell people that actually, they want to dump this clinic and go to another clinic? Even in the NHS?

And then she delved into the depth of the Mothership computer system to find my blood-tests for me, and found that they’d all been creatively mis-filed under the pile of beta HCGs I’ve had this month and I had to explain again and again I’d had eight vials drawn. Eight. She could find four. Was she sure those weren’t the beta HCGs? She would check. Tap tap tap. Mutterings about people messing with the system in her absence. Eventually I heard the printer on her desk start up and she assured me she would take the whole lot to Senior Consultant and get his interpretation of them and have him get back to me.

And then told me I should really, really get myself referred to Lesley Regan.

I thanked her enthusiastically and hung up.

Naturally I googled the everlovin’ out of Professor Lesley Regan, and yes, she does head the biggest Infertility and Recurrent Miscarriage clinic in Britain, and has written a book, and did all sorts of pioneering work on Hughes Syndrome.

So. Um. I must admit it was a very clever way for the secretary to distract me from the royal half-assedness of my blood-test results/ACU referral.

And now I must put my Big Girl Panties on and really go to work.

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10 responses to “FAIL day

  • Heather

    I hope they get back to you ASAP with those results!!

    How long do you think it will take to get in to see super famous author doctor?

  • katie

    Good book but very complicated and medical. When we were seeing our clinic they were doing an NK cell trial and at the time Prof Regan* didn’t believe in NK cells but have no idea of the outcome of the trial or what the St Mary’s clinic is now practicing.

    *see also, great TV series.

  • a

    Now that’s a good secretary…if you talk to irate patients, you should tell them that they should see someone better. That way, you have less work! Losing bloodwork results is even better!

    I hope you get to see someone soon.

  • Hairy Farmer Family

    I have both her miscarriage and pregnancy books, although the miscarriage one is sadly loaned out at present. I should have thought to retrieve and bring it with me. Arse!

    Yes. When the clinic staff tell you to give up & leave, you, umm, leave. Not stopping to let the door hit you in the arse, either. Doc Tashless next stop, then! This is where the whole London-living thing really is of benefit: the experts tend to be practising on your doorstep. And you deserve the most expert of expertest opinions, because you is very, very special.

  • Twangy

    Agreed. Sod it all. Tremendous sympathy on your sleepless night. Middle of the night thoughts are not pretty.

    And, interesting development on the Prof. Famous, eminent, good, good. So long RMC! Fare thee well.

    Hope work went okay?

  • Betty M

    I’m not surprised that she has suggested Prof Regan at all – although you have lost no time as they definitely dont see anyone until post 3 confirmed m/c. In my experience (vis friend w/Hughes) there is a hefty wait though for both private and NHS patients so sooner that referral goes in the better. She was no fan of the far out end of “immune” tests etc favoured by some of the expensive IVF clinic types. they also favour a very active handholding approach to pregnancy – basically you can have a scan a day practically if that is what it takes. Another alternative is Prof Hughes (yup its his syndrome) old NHS clinic at St Thomas’s – he is now private at the London Lupus Clinic at London Bridge.

    Hope work is not too grim.

  • meganlisbeth

    nice! too bad you had to struggle to get such results.
    i hope work is okay.
    xo

  • womb for improvement

    26th of May? That is surely not the next available appointment. Even bearing in mind the bloody waiting lists. so, so frustrating.

  • thalia

    As Betty says, the wait for Prof Regan is dreadful, but the wait for Prof Rai, her compadre, is much shorter, a friend got in to see him recently within a month. He is just as good and has done a lot of the research into the ‘sticky blood’ disorders. So I’d recommend seeing him instead. It’s the same clinic, just different guy.

  • Korechronicles

    May! May? As in You and the 26th of. It’s frightening…think of all those other women ahead of you. I am furious at the universe on your (and their) behalf.

    Get thee to the Referralist – stat.

    xxR

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