Nuts in May

Too much information will certainly be shared

Brace the mainsail January 30, 2013

The thing about getting a fourth opinion is, that you might agree with the fourth opinion. And then you have to do something about it. And then, and then. Hope is painful. Medical treatments raise the stakes, and failed cycles drive those stakes into your back. It’s been two years, nearly, since I was last officially, look-I-have-two-lines pregnant. It’s been miserable, but, as Woody Allen said, life is divided into the miserable and the horrible. Be happy when you’re miserable, at least it isn’t horrible.

H is liaising (or, actually, playing telephone tennis) with Dr 4th Opinion’s secretary. We are seeing about scheduling an HSG, to check the endometriosis hasn’t glued the one-and-only fallopian tube shut (it’s been over a year since anyone last took a peek at it). And then we do LIT. And aspirin, and heparin, and Intralipids. If the tube is damaged, we go straight to IVF. If the tube is fine, perhaps we carry on trying au naturel for a few cycles, then retest to see if the LIT sensitisation is still holding, and then rethink the IVF option if there have been no two-lines. Dr 4th Opinion thinks IVIG, neupogen, clomid, steroids and progesterone support are all unnecessary, especially as the lining of my uterus is not infested with psychotic killer cells looking for embryos to slay.

I can go with this. H can go with this. So we are going with this.

I Just don’t expect any enthusiasm or positive thinking. They burnt out of me long, long ago.

 

Trauma January 21, 2013

No, I’m not dead, nor on holiday, nor did the infrastructure of the known world collapse, taking the internets down with it. I was just… sulking.

Shark week, it has been, and a good brutal one too. It’s day seven now, and I’m still bleeding like a stuck pig, which you’ll agree is not optimal. Cute Ute the Despoiler has decided she rather likes the trick of easing up on the bleeding, waiting until I am lulled into a false sense of security also mere ‘super’ tampons (as opposed to double-plus super extra ultra tampons, which can double as marital aids, frankly), and then yanking out the bathplug and laughing hysterically (ho ho ho) as I leap to my feet with a tiny shriek and flee to the bathroom, blood running briskly down my leg. I am very tired.

On Sunday night, a week ago now, as full of cramps and anxst as can be, I decided to check my medication supply to see if I needed to renew any prescriptions any time soon. There was no urgency. There was a whole box of diclofenac suppositories right there, see? I don’t remember leaving a half-empty box back on the shelf, so it must be a full box… you see where this is headed, right? Because you don’t have the IQ of a house-plant, unlike me. So on Monday morning, in quite heady amounts of pain and starting to spot, I took my slightly-out-of-date repeat prescription form to the GP, to see if they’d renew it urgently, as, obviously, to my mind at least, anyone on this kind of painkiller really rather means it when they say they need it urgently, nu?

I am, personally, absolutely freaked out and humiliated by what happened next.

The receptionist was adamant that they did not renew prescriptions the same day, it would take 48 hours. That there new policy was that GPs were not to be disturbed for anything short of an emergency. That renewing a prescription was NOT an emergency. That they couldn’t renew it anyway, as it was out of date. That I’d need to make an appointment to see a GP. That there were no GP appointments left for that day. That coming in that evening for the emergency appointments first-come-first-served slots was not an option because they were for emergencies, which this was not. At this point, in tears, I asked if it would be considered an emergency if I threw up or fainted while waiting, and the receptionist told me that wasn’t very nice. She actually thought I meant it as some kind of passive-aggressive twatweaselry. I actually meant the question seriously, because I was in pain and freaking out and what the hell else was I supposed to do?

I was crying too hard to speak at this point, and I was in a waiting room full of people, and so I fled home again. H, thank fuck, was still at home himself, and promptly grabbed his coat in one hand, me in the other, and dragged both back to the surgery, where he, very calmly but sternly explained to the receptionist that this was not about some idiot trying to game the system, this was about a person in serious pain, and that he’d seen how the pain affected me, and that I did, actually, need this drug with some urgency, thank you, and after a few minutes bluster she caved completely and arranged for my prescription to be renewed and waiting for me by lunch-time. So in the end all was well.

And I cried all morning, because I had been so very scared I’d have to do Shark Week with inadequate pain-relief, and because the whole thing was so humiliating. I’m thirty-seven. I’m a nice respectable middle-class over-educated lady with a cut-glass accent. I can, if necessary, out-posh the Queen. How was I reduced to weeping hysteria in a GP waiting-room, being treated like a moronic teenager having a tantrum by a GP’s receptionist?

I don’t think I can do this for very much longer – menstruate, that is. It’s giving me shell-shock. Every cycle, also, is doing more damage to my uterus. When I lie on my back and rest my hand on my belly, now, I can feel it even through my ample padding, a great heavy bruised fist buried in my guts, an obscene parody of early pregnancy.

 

Opinions are like glands. I’ve got lots of both. January 7, 2013

Filed under: I visit the Doctors,The innards,There is a husband — May @ 9:59 pm

So, my thyroid. Back at the end of last summer, among the bazillion tests Dr Expensive was gleefully ordering, my GP and I decided to recheck my thyroid, as the last test was taken in 2007.

So I got needled, as per, and then played telephone tennis with the nurse at the practice for a few weeks ending in a no-score draw, and then I forgot about it because Life. And then I saw my mother at New Year and the subject of her thyroiditis came up, and I thought oh! My thyroid! And I needed to refill my Metformin prescription anyway, so I asked the GP to just ‘fess up.

My thyroid, it is normal.

Seriously. TSH is 1.14 mu/L. Free T4 is 14.1 pmol/L. Given that reference ranges for ‘normal’ are respectively 0.4-5 and 10-23, this is very normal. Hell, the TSH is not only under 5, it’s under the magic 2 recommended for ladies attempting ensprogulation. So, dear internets, given that you’re cleverer than my doctors, is it worth having my thyroid antibodies tested, or is the fact TSH and T4 are perfectly fine finio fine fine?

Anyway, it sort of cheered me up.

And! H has found another doctor specialising in reproductive immunology, and has contacted him, and has made an appointment, and we’re going to see him on Thursday. For a 4th opinion! Which is not in the least bit weirding me out and making me sound neurotic as a bag of wet cats!

If he recommends medicated + Clomid DIY cycles ad infinitum, I will climb his freakin’ curtains and make him eat the pelmet.

 

And then December 30, 2012

After the In-Law Mellow Interval With Roast Dinner, H and I came home again (did I say that already? I did say that already). We spent a day washing things and going to the cinema (The Hobbit – not bad, fight scenes amazing, interspersed with episodes of Mystic Cheese, would try the patience of anyone not a die-hard Tolkien/Jackson/LOTR fan, Richard Armitage can come and sulk at me anyday, as can Adrian Turner. Oh, and Martin Freeman. He can come too. *Fans self*). We had friends over for dinner and stayed up until 3:30 am, talking crap and getting very drunk. Well, they did. I didn’t, because Metformin, but I don’t need Strong Drink Taken in order to talk crap for hours.

And May saw every thing that she had made, and, behold, it was very good.

Now, we gird loins and go to my Mother’s for New Year, so H can have a go at putting up with his In-Laws. It’s just as well he can drink, because his require a great deal more putting-up-with than mine.

Meanwhile, in matters reproductive, just before Christmas Week of Chaos, H wrote an email to yet another Grand High PoohBah of Reproductive Medicine, requesting a, what is this, fourth? Yes, fourth opinion. Because Dr Expensive is making us both feel uneasy. And because I stamped my feet and shrieked that we needed to DO SOMETHING in 2013, and H needed to actually take a great big stakehold in DOING SOMETHING, because I had the bleeding and vomiting and suffering and weird medications that don’t seem to do much bit to do and that was quite enough, thank you. We’ll see what January brings.

If being at Mama’s precludes blogging, I shall be content in the knowledge that I took this opportunity right here to wish all my Gentle Readers, Pocket People, Dear Friends and Loyal Lurkers a very, very happy 2013, full of joy and wonder and laughter and hugs and heart-warming moments and shit like that.

 

Boxing Day December 26, 2012

Hello, Best Beloveds! I am sitting on the spare bed upstairs at H’s parent’s house, having a good old festive lurk. Cute Ute the Despoiler is whining about something-or-other, which gives me the perfect excuse to be officially Left In Peace, also, not have to do any table-setting or vegetable-preparation. Sometimes, there is something to be said for a Uterus of Doom.

And I am writing this on H’s iPad. It is… amusing. Also, the autocorrect half fills me with delight, half makes me stabby. I may be brief, therefore.

Item! (why not?) – Christmas Day with H’s family was quiet, mellow, peaceful, and pleasant. I very much hope you all can say something similar, at least about the ‘pleasant’ part. Nobody rowed, nobody wept, we all sat around telling the naffest jokes we could think of, and the gift-giving was restrained and tasteful and delight-inducing. Yay us!

Item – My food issues are very awkward. Or, I am feeling awkward about them. There was the incident of the stale and bendy rice-cakes that had been in the cupboard since the dawn of the Jurassic. Of COURSE they tasted like polystyrene if their best-before date was in June. It’s not an inherent quality of the rice-cake, I pinky-swear. Fresh ones are bland, yes, but crucially, crisp and inoffensive. Also, I would’ve liked some cake. Four varieties of cake being joyously scoffed all around me and I am stuck with fruit salad. Or chocolate. Chocolate would do. Only no one is opening the chocolate boxes because they’ve all had SO MUCH CAKE. I know, I know, super-speshul snowflake problems. Especially as MiL made The Christmas Treat Of My Youth in a special flour-free version. Alas, everyone else is eating it in microscopic quantities and bitching about how rich it is, so MiL thinks I’m just being polite when I lavish well-earned and happy praise on it, and puts it back in the cupboards. Argh. It’s supposed to be rich. Argh argh argh.

Item – And booze! The only thing I can drink is gin in tiny quantities, and everyone else is swilling champagne and burgundy. Of course they are. Of course they SHOULD. It’s bleedin’ Christmas. Apple juice doesn’t have quite the same effect. Argh argh argh.

Item – I was very nearly driven insane by Christmas cards addressed to Mr & Mrs H Hlastname. I can tolerate being called May Hlastname, because not everyone realises I didn’t change my name on marriage, but Mrs H Hlastname? Are you freakin’ kidding me? Have you not MET me? Pinko feminist atheist, yes? The one with the hair and the attitude? And don’t tell me it’s etiquette. Since when is it etiquette to call someone by the wrong name?

Item – The In-Laws have a set of lovely neighbours who have a darling little boy, to whom the In-Laws are rather attached, and who made them a Christmas card and tree ornament with his own fair hands. It’s adorable. And it makes me sad, because the In-Laws so very clearly very much want dear little people to dote on in their lives, and H and his brother have not provided any, and in H’s case, this is my fault. And it’s just sad. My MiL is surrounded by friends who are all happy grandmamas, and she isn’t one, and it’s not fair, and I am sad about it. Obviously, sadder on my own behalf than on hers, but sad for her nonetheless.

Item – This post is very itemy because I keep being interrupted. It is also ridiculously grumpy for someone who is actually having quite a nice, peaceful, festive season. I hereby order myself to cheer the fuck up and quit bitching.

Item – Nevertheless, I would like to be at home right now, in pyjamas, drinking rum toddies and watching Doctor Who (which no one he wanted to watch) or the King’s College nine lessons and carols (grumpily vetoed by BiL), or Swan Lake (too long and ‘intellectual’) or Rutter’s Nativity (ditto) or Rossini’s Cenerentola (oh, for God’s sake, May, shut up).

 

Just give me a minute, wrapped up in tinsel December 23, 2012

It’s not that I don’t care about this ‘ere blog, Gentle Readers. It’s just that I have been Quite Busy. (Hi! I’m Quite Busy! Call me Quite!)

Item – Christmahanukwanzaa. We go to the In-Laws tomorrow. The area of the country where the In-Laws dwell is prone to floods. It has been raining in a Noah’s Ark sort of way here in Blighty. I… I have a bad feeling about this…

Item – Therefore, Festive Gift-Shopping. We have done rather well this year, though H keeps saying we bought too much chocolate (H, no we did not. Shut up). Nevertheless, it needed doing, and in evenings and so forth, which interferes with blogging.

Item – Number of surprise pregnancy announcements at my cousin’s wedding last weekend? Four.

Item – I am less bothered about this than I would’ve been last year. I am getting a good coating of shellack, I think.

Item – I was out last night having a social life. I am out tonight having a social life. Isn’t this wonderful? I’m having fun!

Item – I am in six minds as to whether to take the lap-top with me to the In-Laws and do some blogging there, under the guise of ‘writing my novel’. What do you guys think?

Item – Hugs to my delightful pocket-people, who I treasure with every fibre of my heart.

 

Christmas makes everything twice as sad* December 13, 2012

I am spending a second day at home in front of the telly, because I feel very sick and Cute Ute the Despoiler is making a horrible fuss (Stupid uterus. I dislike her intensely. The feeling is clearly mutual). Shark Week began today, so I hope (but by no means expect, damn it) that therefore I’ll be feeling less-than-dead by Saturday and will be able to sit upright on my pew at this blazin’ wedding.

I’ve done two loads of laundry and cleaned a lavatory. It’s not all been Criminal Minds marathons and hot-water-bottles. Alas.

H and I are trying to be festive. We bought a very (very very) small Christmas tree. We put up some decorations – snow-flakes, a wreath, a couple of reindeer. My dear friend korechronicles sent me a Christmas ornament a couple of years ago, which we hung on the bookshelf. I have some handpainted wooden stars as well I need to find a place for – we can’t hang anything on the tree, because you see, my tree is tiny, and so wee, that I sometimes think the pixies gave it to me**, and it would topple over. I received my first Christmas present – you know who you are, you and your classy classy gift-giving – so I opened it for Hanukkah, and am thrilled to absolute bits.

This year, we are going to H’s family for Christmas, because we feel they need us the most (My family is going skiing. Again. They keep asking us to come, but neither H nor I can ski, and the idea of being stuck with my sisters for a week in a country where I don’t speak the language and can’t just run screaming into the mountains in my nightie for fear of Death-By-Snowdrift, does not appeal). At least I won’t have my period (see last year. That was fun).

However to make up for my NOT having my period over Christmas at the ‘rents or in-laws, the In-Laws are coming to us. Tomorrow. So I can still have my period at them. HAH.

And I keep bursting into tears. I wanted to be pregnant. I haven’t been pregnant for so, so long, I am absolutely terrified that All Is Wrong in there and I can’t ever get pregnant again. I’ve had my lot, and they were all duds, and that is that.

Oh, and there’s the tiny question of Christmas, Season of Doom, in that I’ve had two miscarriages over the festive season, and it sucks. The media are doing wall-to-wall baby stories and family stories and babies and families stories and mothers and more babies and every radio is blaring out songs about the wonderful birth of a special baby and people send you cards with pictures of tiny shiny babies on them and Christmas is all about the kiddies, innit? And you don’t know the meaning of love or family until you’ve given birth, allegedly. Why not flay me and roll me in rimming salt while you’re at it?

Pikaia, my first poor little doomed embryo, would be nearly four this Christmas, if she’d actually grown a spine as her nickname suggested she should and lived. Have you seen a nearly-four-year-old in the run-up to Christmas? She’d be so excited you could power a small cathedral city off her for a week. And now she is nearly four, I have so many, many ideas for beloved books and adorable toys for her. I do, I really do, find myself looking at toys shop windows and thinking ‘Would Pikaia have liked that? I hope she would’ve liked that. It’s very cool.’ Or I look at books and think about reading it to Pikaia. And then I have to stop that right now and go and look at a book on astrophysics or baking, because grown women weeping over Dr Seuss are frankly unnerving.

Poor Pikaia. Of all our losses, she’s the one who really haunts me. She’s the only one I ever imagined (however briefly) as a living child, you see (too scarred/scared to do anything of the sort after her). She follows me about like a little ghost, slowly growing up as I grow older. I can see me in my late 50s being haunted by a red-haired university student who keeps forgetting to call home. But for the moment, she’s nearly four. She has fiery copper hair. She loves books and making things and drawing and music. She has a doll or teddy she adores beyond words. She has unusually small hands and feet, because her parents do, and is tall for her age, because her parents were. She is precocious and worryingly articulate, like me, and a little song-bird, like H. I don’t know if she’d be prone to brief but terrifying ferocious outbreaks of temper followed by tears like me, or pouting and sulking like H. I wish I did know. I miss her so much.

And I know I’m not the only one to have a ghost-child. Melissa wrote movingly about hers here (and it touched me particularly because I know that city so well, and can picture it). And then everyone chimed in in the comments, and I thought, see? I’m not mad. We’re not mad. Not mad at all.

* Douglas Copeland.
** Waitrose, actually.

 

This post is brought to you by the word ‘and’ December 8, 2012

Next weekend, H and I are going to a family wedding. I have approximately 97 million first cousins, so this sort of thing will keep on happening. We are also having the in-Laws over for a night for a completely unrelated jamboree the same weekend. This is going to involve a great deal of flinging ourselves in and out of cars in a state of agitation and silk frocks. Hurrah!

To that end, and also to Christmassy ends, H and I spent the day trapped in a gigantic shopping centre, in which I nagged H into buying a smart suit with the argument ‘but you need a new suit anyway’. H is disgruntled because he has a perfectly nice and rather more colourful jacket that he wanted to wear instead. He is right. It is a lovely jacket. It just makes him look like a Bond villain. Which is probably a rather jolly thing to look like at a wedding, but he doesn’t have a pair of trousers that go with it, and no Bond villain worth his horrendously overbred Persian cat would appear in unsuitable trousers. In the new suit, he looks merely handsome and suave. Heigh ho.

There was a party-frock sale also, so I tried on five dresses, one of which made me look like a Lorne sausage that had been trodden on, one of which made me look like Elizabeth Taylor at a Royal Variety Performance (stylish, but so very not me), one of which made me look pregnant with a fourteen-hooved yak, one of which actively prevented me from sitting down, one of which was very nice, actually, and one of which was divinely cute and crucially, NOT on sale. So I bought that last one. Again, I say, heigh ho. Also, it’s HARD, finding cute party frocks, when you are 36DD and have a belly and hips and an arse like a bouncy castle and yet, crucially, a waist also. HARD, people. And DEPRESSING.

And so and obviously and therefore, my period is due that weekend. Bwahahahahahahahaha!

 

The roller coaster of IVF November 11, 2012

To date I have not been overly keen on, if not in reality actually more against, IVF (for me personally, I hasten to add – this is not a moral or technically principled qualm).

As the weeks and months of TTC have merged into years, however, I think this needs reevaluating. Firstly, we now know a lot more about what we are dealing with/are up against. Secondly, we are seriously starting to run out of time (why yes, it is my birthday in a couple of weeks – how could you tell).

So, you may well ask: what were my problems with IVF in the first place?

One of my biggest fears has been the perceived risk/danger. As May only has one ovary remaining, if something goes wrong with that (ovarian hyper-stimulation syndrome, for example) then it really could be game over. I had/have the impression, possibly unfairly, that especially within the NHS IVF is not a well-invested-in process and therefore may lack the individual care, attention and precision to reassure me. I think I’m justified in stating that their attitude, when we did get to the first step of consideration for treatment, seemed to be a very rule-based, “same for everyone because we must be fair to everyone on very limited resources” approach. I had/have also witnessed that, while the NHS is a fantastic service for dealing with the majority of everything, it didn’t/doesn’t handle edge-cases, such as May, very well. These factors combined all played into my fears.

I think we are in a very different place now. We’ve run the NHS gamut as much as we can; therefore if we go private now it would not compromise how we may be treated on the NHS, which I’ve heard can not be overly helpful to patients who are also doing parallel private treatment (for I think perfectly understandable/reasonable overall cost effectiveness reasons). We have been saving over the last few years and combined with offers from May’s mum to help with costs plus age and other complicating factors I think private is our only realistic option now anyway. I have the impression, possibly unfounded, that a private clinic will do things absolutely on an individual basis and take care (for fear of harm to reputation – and therefore profits – if nothing else).

So that’s the rational reason; the more psychological block is about the process itself and what that means about my role in fatherhood. This is more difficult to articulate, partly because I have problems identifying and dealing with the emotions surrounding issues (see previous post), but also because it goes against my self-image of me not being a chest-beating, self-important, prowess-obsessed bloke… it’s not me making the baby. I do know enough biology to know it never would be me really anyway, but the micro-details of what happens in utero can be easily brushed over when people think about these things. There is still an overall conception (haha, sorry) of those brave ‘boys’ swimming the tough swim, healthy competition, fittest wins, etc. that provides the ‘natural way’ of these things in the minds of the world. Yes, this is a perception thing as much as anything else. To take that process out of that environment and have an artificial laboratory induced, ‘test-tube’ event – under the harsh lights of scientific judgement and evaluation – doesn’t have that same narrative or acceptable ‘normality’.

Finally, there is another psychological trope that plays into this. Over the last few years, and particularly in psychotherapy recently, I have had to get used to the idea that, as much as I try to deny it, I am a very controlling person. Those that know me may (or may not) be surprised that the gentle, unassuming, introverted soul that I am has this trait. But I can assure you that apparently (I’m still coming to terms with this) I have a strong and wilful mind that has an unfortunate (possibly sometimes unconscious) habit of using passive-aggressive techniques to influence and control. The thing is, the thing about IVF is, that it takes everything out of my control. The same is largely true for May, of course, but this post is about me, all me. Before knowing and understanding this and therefore being able to cede controls and make the choice there was a ‘thing’ at the back of my mind nagging away at this isn’t what I really want to, if not more strongly saying no!

Now we understand that and we are where we are, it’s time to make a positive choice and work for a positive outcome and say… YES!

 

Over to H November 1, 2012

Filed under: All the rest of my life,There is a husband — May @ 8:55 pm

I’m not here, I’m writing a novel. If you want actual blog content, please feel free to nag, beg, demand and emotionally blackmail it off H.

See you in December.

Much love,
May

 

 
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